MPN Research Foundation/Incyte survey of MPN patients

OK, let me say up front that I am leery of giving info to Big Pharma like Incyte, the manufacturer of Jakafi. However, with Jakafi poised to be approved for use with some forms of ET at a price tag of $7,000 per month, I think the company needs to know that a lot of us won't be able to afford it. 

So I did take the survey co-sponsored by Incyte and the MPN Research Foundation as advertised on Facebook:

A research study (sponsored by Incyte Corporation) is being conducted to learn more about the impact of MPNs on patients’ lives. Incyte is seeking patients aged 18 to 70 with MF, PV or ET to participate in a one-time, 30-minute online survey about how your condition has affected your work, finances, and quality of life. If you are eligible and complete the survey, you will be compensated. For more information, please visit: https://www.surveymonkey.com/r/VX27NG2

The survey takes about 10 minutes to complete, and collects info about your household income and how ET has affected your work and lifestyle. This seems to be for patients in the U.S. only (the first question requires that you confirm you live in the U.S.).

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