Saturday, September 23, 2017

IPSET helps figure your thrombosis risk

I'm over 60, so how come I'm not on Hydrea (hydroxyurea)? Other patients my age with lower platelet counts are on chemo, while I'm still taking an aspirin.

All I understood from Dr. Blood at our last chit chat was that she considered me "stable" (that is my blood counts were staying in the mid 600s to mid 700s), and that age 60 wasn't a magic number that indicated a need for chemo, even though everyone over 60, regardless of health status, is walking around with a statistically higher risk of blood clots.

Monday, September 18, 2017

My self-improvement kick #6: Physical therapy, massage, and flu shots

I try to keep myself in shape and take care of myself, but it is increasingly difficult what with age and ET and Life in General getting in the way. Here's my latest saga:

I wrote about going to physical therapy earlier this year, and it helped a lot. None of the exercises were terribly strenuous. Nothing hurt a lot. Most involved stretches. But do allow me this brief rant: 

I ended up having to pay about $400 for this treatment. It was worth it, and I will pay it, but I could have gotten out of this a lot cheaper if I had just asked for a prescription for a pain killer. And therein lies a big problem with American health care. Physical therapy is a "high touch" proposition. You need an actual person to assess your problem, show you what to do, make sure you're doing it properly, prescribe your exercise regimen, and follow up to see if it's working. It doesn't work all at once. I did not dance out of the office Day One and throw my cane in a gutter. But six weeks later, I am sleeping at night. And I am saved having to take a bunch of medication. I am not walking like Chester on Gunsmoke. Why don't insurance companies cover this treatment better if they truly want people off the oxy and other pain meds? 

Anyhow,  I should be good as long as I do the exercises. Which leads me to ...

Saturday, September 9, 2017

The debate: should some ET cases be reclassified as preMF?

Dr. Heinz Gisslinger and some other MPN specialists are looking at whether we should add a new sub group of MPNs: preMF. This is important because it affects those of us with ET.

Dr. Gisslinger explains it here (his German accent may be a little difficult at first). I have a summary after the break.