Dr. Ruben Mesa, Mayo Clinic hematologist, talks about symptoms with MPNs in the above video, noting that fatigue is the major complaint. Mesa discusses lifestyle changes that might help (no smoking, reduce drinking, lots of water, take a nap--I've done all that except for the nap). But what really seems to help most, he says, is gradual, gentle exercise.
I'm not an enthusiastic exerciser, but it sounded more appealing than Ritalin, which jags you up, but makes you nervous.
Hence my new "bike to nowhere."
Given that Midwest winters aren't always conducive to outdoor walking, I bought one of those stationary mini-trainer bikes you can pedal while sitting in a chair in your sweatpants or pajamas. So far, I've worked up to 30 minutes per day, five days a week. And I have to say that after a month of this, I see some noticeable improvement. (I'm still keeping up with my two-minute yoga stretches. )
If you're thinking about buying one of these things, do some research and read the consumer reviews. (I always start with the lowest ratings before I get to the glowing 5-star comments, which, for all I know, were written by shills paid by the manufacturer.)
The bike I chose was about $40. It's small and stores behind the couch. It's sturdy, quiet, and pedals smoothly once you get it positioned correctly with your chair. At first it clacked and clattered; the wrench they sent with the unit did not tighten things down enough; I had to use the household screwdriver for that. Not a big deal.
If you're looking for vigorous aerobic training, this is NOT the equipment you want. You can adjust the tension somewhat, and, of course, how fast you pedal. But my heart rate is more elevated after a 15-minute brisk walk than 30 minutes on the bike. However, it's better than just sitting on my fanny, it does warm me up, and I can feel it working my muscles. (To prevent cramping, I alternate pedaling backwards and forwards every so often.)
The bike is also a stress reliever. I can use it when I come home from work and pretend I'm riding away from various situations ... or running over certain people, depending on the day I've had. Added bonus, I can read while pedaling without slowing down. So for someone like me who enjoys the sedentary life, this is about as painless as exercise gets.
The bike can also be used on a table to exercise arms. I haven't tried that yet, but may work up to 15 minutes of that next month.
Feel free to share the exercise regime that works for you in the comments.
Be well!
Related: My self-improvement kick: Update #1
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ET is a serious disease that requires specialist care. Discuss anything you read here with your doctor. No comments promoting "alternative" or "natural" cures (yes, this includes Rick Simpson's Oil) will be published.