MPN Landmark survey results are in!

Over on our Facebook page awhile back I posted a link to the MPN Foundation's Landmark survey. Many readers of the blog and FB page took that survey, and the results are in.

Please join us on our FB page to discuss. Meantime, some of the interesting tidbits I found:

• More than half (56 percent) of us say our disease affects our quality of life. Not surprisingly, fatigue and headaches are our most reported symptoms.

• There are differences in treatment goals between doctors and patients. For example, 21 percent of us want the progress of our disease to slow. Only 4 percent of doctors set that as a top goal.

• Most doctors (94 percent) said they understand how our disease affects our lives. But fewer of us (74 percent)say that the doctors actually do get it.

• About 56 percent of us have changed our doctors, mostly because we weren't satisfied with our initial care. But once we found the right doctor, we are happy with him or her.

Here's Dr. Ruben Mesa, who took the lead on this study, talking about the findings.

Be well!

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