Got Essential Thrombocytosis?: ET in younger patients

Sunday, January 7, 2018

ET in younger patients

This little video featuring Dr. Naveen Pemmaraju from Anderson Cancer Center is getting a lot of buzz over on our Facebook page, so I am cross-posting it here. Based on the hits, I'm guessing there is a real need to talk about treatment for children and young people in child-bearing years with ET.

Please take a listen (about three minutes), and discuss here or on our FB page (link at right).

Some things younger patients should discuss: Can youngsters take daily aspirin therapy? What are the long-term effects of chemo? How will ET affect fertility? How will ET affect pregnancy? What ET medications are safe to take during pregnancy?

Be well!

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ET is a serious disease that requires specialist care. Discuss anything you read here with your doctor. No comments promoting "alternative" or "natural" cures (yes, this includes Rick Simpson's Oil) will be published.

Alphabet soup glossary

AML: Acute myelogenous leukemia. A type of leukemia sometimes developed by a small number of MPN patients.
AVW: Acquired von Willebrand disease. A bleeding disorder caused by extremely high platelet counts. Oral chemo can reverse AVW.
CALR: Calreticulin protein, which is an alternative indicator of ET to JAK2.
CML: Chronic myeloid leukemia.
DVT: deep vein thrombosis. Many patients are diagnosed with ET when they develop a blood clot.
ET: Essential thrombocytosis aka essential thrombocythemia. An MPN typified by too many platelets.
HU: Shorthand for hydroxyurea (Hydrea), still the leading oral chemo for most ET patients.
JAK2: A gene (Janus Kinase 2) in which a mutation (V617F) is present in many patients with MPNs, including ET.
mcL: Microliter. A microliter is the equivalent of a cubic milliliter of liquid, i.e., blood, if you're reading a platelet count.
MF: Myelofibrosis. A bone marrow disease developed by some ET and PCV patients in which the bone marrow has difficulty producing normal blood cells.
MPL: Myeloproliferative leukemic protein. Another indicator of ET, like JAK2 and CALR.
MPN: Myeloproliferative neoplasm. A group of blood diseases of which ET is one.
ODA: Orphan Drug Act of 1983. U.S. legislation designed to encourage research for treatment of rare ("orphan") diseases.
PCV or PV: Polycythemia vera. An MPN typified by too many red blood cells.
SM: Systemic mastocytosis. A type of MPN in which the body produces too many blood cells called masts.